Section 12: Equity in Pragmatic Research

12.1 Introduction

This final module collects resources from throughout the COPRH Con three-year cycle relating to equity considerations in pragmatic research. However, this content is also retained in the preceding modules to reflect the need to think through equity issues during every step of your pragmatic research, from conceptualization and study design through conduct and dissemination.

  • Kilbourne AM, Switzer G, Hyman K, Crowley-Matoka M, Fine MJ. Advancing health disparities research within the health care system: a conceptual framework. Am J Public Health. 2006;96(12):2113-2121. doi:10.2105/AJPH.2005.077628

Let’s Get Real: Planning Rigorous Pragmatic Health Services Research for Equitable, Real-World Care

12.2 Equity in Engagement

NEED CONTENT HERE

  • Jolles MP, Fort MP, Glasgow RE. Aligning the planning, development, and implementation of complex interventions to local contexts with an equity focus: application of the PRISM/RE-AIM Framework. Int J Equity Health. 2024;23(1):41. Published 2024 Feb 27. doi:10.1186/s12939-024-02130-6
  • Maar M, Yeates K, Barron M, et al. I-RREACH: an engagement and assessment tool for improving implementation readiness of researchers, organizations and communities in complex interventions. Implement Sci. 2015;10:64. Published 2015 May 4. doi:10.1186/s13012-015-0257-6

Bombard Y, Baker GR, Orlando E, et al. Engaging patients to improve quality of care: a systematic review. Implement Sci. 2018;13(1):98. Published 2018 Jul 26. doi:10.1186/s13012-018-0784-z

Stakeholder Engagement in Complex Environments: One Size Does Not Fit All

Juggling the Various Components of Stakeholder Engagement: A Hands-on Approach

Padres Efectivos: PCORI-Funded research project leads to sustained partnerships

12.3 Bias and Equity in Outcomes

[NEED CONTENT]

  • Lorenc T, Petticrew M, Welch V, Tugwell P. What types of interventions generate inequalities? Evidence from systematic reviews. J Epidemiol Community Health. 2013;67(2):190-193. doi:10.1136/jech-2012-201257
  • Sadare O, Williams M, Simon L. Implementation of the Health Equity Impact Assessment (HEIA) tool in a local public health setting: challenges, facilitators, and impacts. Can J Public Health. 2020;111(2):212-219. doi:10.17269/s41997-019-00269-2
  • Wallerstein N, Duran B. Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity. Am J Public Health. 2010;100 Suppl 1(Suppl 1):S40-S46. doi:10.2105/AJPH.2009.184036

Process Evaluation and Adaptations in Complex Trials

11.4 Adaptation and De-implementation

[CONTENT NEEDED – CAN DUPLICATE FROM SECTION 11 ABOVE IF PREFERRED.]

  • Resnicow K, Baranowski T, Ahluwalia JS, Braithwaite RL. Cultural sensitivity in public health: defined and demystified. Ethn Dis. 1999;9(1):10-21. https://www.jstor.org/stable/45410142
  • Domenech-Rodríguez M, Wieling E. Developing culturally appropriate, evidence-based treatments for interventions with ethnic minority populations. In: Rastogi M, Wieling E, eds. Voices of Color: First-Person Accounts of Ethnic Minority Therapists. SAGE Publications, Inc. ; 2005:313-333. doi:10.4135/9781452231662.n18
  • Barrera M Jr, Castro FG, Strycker LA, Toobert DJ. Cultural adaptations of behavioral health interventions: a progress report. J Consult Clin Psychol. 2013;81(2):196-205. doi:10.1037/a0027085
  • Barrera M Jr, Berkel C, Castro FG. Directions for the Advancement of Culturally Adapted Preventive Interventions: Local Adaptations, Engagement, and Sustainability. Prev Sci. 2017;18(6):640-648. doi:10.1007/s11121-016-0705-9
  • Baumann A, Domenech Rodríguez M, Parra-Cardona JR. Community-based applied research with Latino immigrant families: informing practice and research according to ethical and social justice principles. Fam Process. 2011;50(2):132-148. doi:10.1111/j.1545-5300.2011.01351.x
  • Bernal G, Domenech MM, eds. Cultural Adaptations: Tools for Evidence-Based Practice with Diverse Populations. 1st ed. American Psychological Association; 2012. doi:10.1037/13752-000
  • Cabassa LJ, Baumann AA. A two-way street: bridging implementation science and cultural adaptations of mental health treatments. Implement Sci. 2013;8:90. Published 2013 Aug 19. doi:10.1186/1748-5908-8-90
  • Domenech Rodríguez MM, Baumann AA, Schwartz AL. Cultural adaptation of an evidence based intervention: from theory to practice in a Latino/a community context. Am J Community Psychol. 2011;47(1-2):170-186. doi:10.1007/s10464-010-9371-4
  • Helfrich CD, Hartmann CW, Parikh TJ, Au DH. Promoting Health Equity through De-Implementation Research. Ethn Dis. 2019;29(Suppl 1):93-96. Published 2019 Feb 21. doi:10.18865/ed.29.S1.93

Cultural Adaptations of Evidence-Based Interventions to Fit to Context

11.5 Dissemination and Sustainability

[CONTENT NEEDED]

  • Kwan BM, Brownson RC, Glasgow RE, Morrato EH, Luke DA. Designing for Dissemination and Sustainability to Promote Equitable Impacts on Health. Annu Rev Public Health. 2022;43:331-353. doi:10.1146/annurev-publhealth-052220-112457
  • Shelton RC, Adsul P, Oh A. Recommendations for Addressing Structural Racism in Implementation Science: A Call to the Field. Ethn Dis. 2021;31(Suppl 1):357-364. Published 2021 May 20. doi:10.18865/ed.31.S1.357

  • Shelton RC, Chambers DA, Glasgow RE. An Extension of RE-AIM to Enhance Sustainability: Addressing Dynamic Context and Promoting Health Equity Over Time. Front Public Health. 2020;8:134. Published 2020 May 12. doi:10.3389/fpubh.2020.00134

Principles, Methods, and Systems for Designing for Dissemination, Sustainability, and Equity

Making a Sustainable and Equitable Impact on Health through Pragmatic Research: The Translational Sciences Benefits Model

Translating for Impact: A Toolkit to Apply the Translational Science Benefits Model to Your Work

Reconceptualizing Sustainability and Adaptation: From Static to Dynamic